Off to Emerge...and Back Again

So the Family Doctor called to see how Anniek is and if her fevers are gone down and I said no...she said if they are still going on at 6 to bring her in to the after hours clinic that they have...so I brought her in and the doctor their said to bring her to Emerge. She called and let them know that we were coming and sent a letter with me. Emerge had us wait over an HOUR so I was not happy about that...they gave her Tylenol when we got there...checked her temperature again and it was HIGHER then it was when we got there...so they had to give her something else. The student Doctor was asking his classmate what they 4 defects are for TOF right outside the curtain so after a few guesses I said you can just ask the parent TOF is made up of these CHDs. They did a chest x-ray (clear) and a urine culture (normal) and after she was finally able to get enough down to make them happy, after they gave her something to help her with the gaggyness she was having and her temperature was under control they sent her home...at 3 am.

Fevers and Doctors

Well...I said in the last post about it being a while because not much has happened but now she is sick. First off on yesterday Anniek complained of a sore throat before school and I said that she can still go to school with a sore throat but if she starts feeling worse I will pick her up. I get a call from the After School Program about 10 minutes after they get her...she is asleep and feels warm so can I come pick her up...I picked her up brought her home and I have no Tylenol so I called to get some delivered. I look in her backpack and read her communication bag...the teacher wrote a note about how Anniek is not herself...not sure WHY they did not call me to pick her up from school. I get the Tylenol delivery and give her some she goes to sleep...in my bed cuz she is sick. I go to bed later and wake up to her shaking from the chills, I check her temp 104.7...WOW!!! I give her more Tylenol and it came down so back to bed morning comes and it is up again so I call the Family Doctor and they said to come right in and they did a Strep Throat swab that you get the results right away (they were negative) and one that the cultures take 48 hours to come back. So waiting for the results back and hoping that her fevers get better.

Cardiology Appointment

Oh wow, it has been a while since I updated this...but its good in a way that I have not needed to up date it which can be a good thing as nothing has really happened. She had her cardiology appointment today and it went well. She was great for all the tests and I told them about Anniek complaining about her heart racing so they said that they would do a Holter Monitor...after she is in school so that she is busy while it is being done. Her valves and everything look good...so they will see her again in 6 months.

Disney On Ice

Anniek won 2 tickets to go see Disney On Ice through the library here in the city. She doesn't know that she is going yet as it is not until next month. We read almost 100 books as it is 1 ticket per book and she loves it when we read to her.
Anniek has her cardio appointment in March. I am starting to get a little nervous about it because this is the first "real" appointment since she had the stent put in. She had an appointment a few weeks after the stent was put in to check on it and it was the size it was supposed to be, but she has grown quite a bit since she had the stent put in and I know that they can only go in once, maybe twice if they are lucky and make the stent bigger before she will need to have open heart surgery again...which I hope will not be for a long time.
At school we got her a wiggle cushion as she has having difficulties with sitting still and at her desk when it was time to do work. We discussed with the teacher what might help and decided to give the wiggle cushion a try and asked the Doctor in Toronto for a note saying that she needs the wiggle cushion for the school...she now has one for both at school and at home for during dinner...which has helped her stay at the table longer. She is also eating enough that we were able to cut out 1 can of formula per day which is awesome!!! So she doesn't need to drink any at lunch hour...she can just eat her lunch that gets sent to school with her.

She Made The Paper!!!

Anniek stays at a respite home different times so that I get a break for a couple days. When Anniek was there this time they called and asked me if it would be okay to take Anniek out on the new wheelchair bikes that they got and if it would be okay if the local paper took a couple pictures and included her in the article. I said that it would be fine if they did that. A few hours later they called back as the lady from the newspaper wanted to do a phone interview with me and double check to make sure that it was okay that Anniek be in the paper and on a video clip on their web site.
The article is HERE and the video clip is HERE.

Cardio Check-Up

Anniek had her cardiac check up following her stent today. The cardiologist is very pleased with how things look with the stent and said that she will see Anniek again in 9 months. I am happy that it is not a year...but that is because the cardiologist said "So I see Anniek every 6 months usually right?" so I was like yes, hoping it would be 6 months...and she goes "okay then I will see her again in 9 months". So I am glad that I didn't correct her and tell her well actually you have only seen her every 9-12 months.

Discharged!!!

Anniek was discharged at 10 this morning. She did not want to get the IV taken out because she didn't want to have the tape taken off from the IV, she wanted to go home with it as she knew the tape would hurt coming off. The nurse told her that she can't go home with the IV still in...so does she want to stay in the hospital. Anniek said "YES" because she didn't want to have the IV taken out...so that back fired on the nurse a little bit. After the IV was finally out we were able to get things ready and head back to London. We stopped for a little bit at a rest stop so Anniek could walk around as suggested by the nurse on the way home. Traffic was clear so it did not take long to get home. We both glad to be at home and sleeping in our own beds tonight.