This morning we got up early to go to Anniek's first appointment, Rheumatology. The doctor looked at her joints and said that her right wrist is still a bit swollen, she did range of motion of her joints and Anniek had no pain with the range of motion. She also watched Anniek walk and run. Anniek is still toe walking and they are unsure why she is still toe walking. They also said that they want blood work. They said that they were going to poke her for blood work and said it in front of Anniek so of course she is in tears. I said that she has a PICC line, they can use that, eventually after discussing it they decided to wait until after Cardiology to get the blood work in case she needed blood work from them. When we finish it was 4 HOURS before her next appointment, so I decided we may as well go home as there is nothing to do around the hospital for 4 hours.
We went back to the hospital after lunch for Anniek's cardiology appointment. They just did weight and a ECHO. We did not even get to see the Cardiologist today. She will look over the ECHO later and let me know if there are any concerns (I like it better knowing that day). I also talked to the nurse practitioner there and told them about this mornings appointments and them wanting to poke Anniek even though she has the PICC line and she said that they should do it through the PICC line and if they won't do it through the PICC line to have them page her and she will tell them to do it through the PICC. She wants blood tests done next week...twice...after the antibiotics are done before they decide. So we went back and got the blood work done, they did it through the PICC no problem.
We also made another Rheumatology appointment for January and if she is still toe walking they will look into it more, and Cardiology is not until February again, unless they saw something on the ECHO which I have not heard about yet, but will post if its not good news.
Now we just have to wait until next week to see what the 2 blood tests say before they pull the PICC line.
Happy Halloween!
5 years ago
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