My Miracle Anniek Who Has Tetralogy Of Fallot: Learning Disability

Wednesday, December 5, 2012

Learning Disability

Today I got to talk with the Doctor in Toronto that accessed Anniek for a Learning Disability. They did the testing in Toronto last month and today was the call to basically get information that is going to be on the report. It turns out that Anniek has a Communication Based Learning Disability. I am not too sure what to make of this...yes it does answer some questions for me which I really like, but it doesn't explain others. The Doctor said that she needs an EA at the school and the school basically told me NO and the Doctor that it is not going to happen (with other wording). The Doctor also said that she needs an IPAD at the school. I can't afford one let alone all the apps that she wants for it. The school said that they think the IPAD would just be a distraction and they don't want that to happen. I can understand it being a bit of a distraction for the first little bit, but after the novelty wears off about it, then I can see it REALLY benefiting Anniek, she LOVES playing on apps on my phone and being on the computer so I think that she could really learn from it and it will help her explain stuff that she can't explain to us using her words. So I am going to look into ways to get an IPAD for her and hopefully I will be able to find something.

1 comment:

ButterflyEffect said...: I am glad you were able to get some answers. Don't let the school just say no and that be the end of it. You can contact the Special Education Learning Co-Ordinator, ours is wonderful and has helped us immensely when we have hit major roadblocks with the school. The Ipad is another story. We have been told by many therapists that the TVDSB does not support Ipads for school use at all at this point. It WILL change eventually, but for now they aren't budging apparently. But there is other software and equipment that could be ordered for Anniek. I would suggest contacting the parent mentors at TVCC as well if you haven't. They are absolutely wonderful at guiding parents through school issues such as this.; January 12, 2013 at 8:35 PM

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Anniek's Heart

Tetralogy of Fallot is a congenital heart defect (a problem with the heart's structure that's present at birth). Congenital heart defects change the normal flow of blood through the heart. This is a rare and complex heart defect. Tetralogy of Fallot is made up of four different heart defects that are:

Ventricular Septal Defect

The heart has a wall that separates the chambers on its left side from those on its right side. This wall is called a septum. The septum prevents blood from mixing between the two sides of the heart. A VSD is a hole in the part of the septum that separates the ventricles—the lower chambers of the heart. The hole allows oxygen‑rich blood to flow from the left ventricle into the right ventricle instead of flowing into the aorta, the main artery leading out to the body.

Pulmonary Stenosis

This is a narrowing of the pulmonary valve and the passageway through which blood flows from the right ventricle to the pulmonary arteries. Normally, oxygen-poor blood from the right ventricle flows through the pulmonary valve into the pulmonary arteries and out to the lungs to pick up oxygen. In pulmonary stenosis, the heart has to work harder than normal to pump blood, and not enough blood can get to the lungs.

Right Ventricular Hypertrophy

This is when the right ventricle thickens because the heart has to pump harder than it should to move blood through the narrowed pulmonary valve.

Overriding Aorta

This is a defect in the location of the aorta. In a healthy heart, the aorta is attached to the left ventricle, allowing only oxygen-rich blood to go to the body. In tetralogy of Fallot, the aorta is between the left and right ventricles, directly over the VSD. As a result, oxygen‑poor blood from the right ventricle can flow directly into the aorta instead of into the pulmonary artery to the lungs.

An Extra Heart Condition That Anniek Has Is Left Pulmonary Artery Stenosis

Pulmonary Artery Stenosis

Pulmonary artery stenosis is a narrowing that occurs in the pulmonary artery, a large artery that sends oxygen-poor blood into the lungs to be enriched with oxygen. The narrowing may occur in the main pulmonary artery and/or in the left or right pulmonary artery branches. This narrowing makes it difficult for blood to reach the lungs to pick up oxygen. Without enough oxygen, the heart and body cannot function as they should. In an effort to overcome the narrowing, the pressure in the right ventricle (the chamber that pumps blood into the pulmonary arteries) rises to levels that can be damaging to the heart muscle.

My Miracle Anniek Who Has Tetralogy Of Fallot

Wednesday, December 5, 2012

Learning Disability

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